I know you all missed me very much this weekend. Mat and I were off getting some great information about LCA and even had a chance to meet families with the RDH12 mutation like Finley's. So exciting - I can't even tell you, since RDH12 is so rare.
So...........we are very excited about some upcoming events for next year, and I cannot wait to share!!! Stay tuned!
I will blog this week about our time with our niece, and then once all the ducks are in a row, I will share about our upcoming news! We are so excited about what the future is going to hold for kids with LCA!
So - hang in there. I will share when I can. And I will share some pictures of the families I met this weekend. It was awesome to finally meet them face to face and put my arms around these wonderful people. I can't tell you how good it felt to spend time with people who completely get what we are going through.
Yay!!!
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1 comment:
I'm so glad you came back sounding so positive! I can't wait for details - and to hear you give an awesome speech on Saturday :-)
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