Tuesday, October 23, 2012

Two Years

October is such a special mon

Not only is it Blind awareness month, it is also the month we officially became the RDH12 Fund for Sight.

In July, 2010, Mat and I attended our first Lebers Congenital Amaurosis conference.  There, we met 3 other families who have children with RDH12 LCA.  Mat and I pitched our idea of becoming our own foundation.

And those families all said yes.

We got all of our ducks in a row, and with the work of us and those families, October 2010 we signed the papers to become an official foundation.  We had been in talks with Dr. Bennett and knew we needed to raise $70,000 in order for the research to begin.

Things moved quickly after that, and I can't believe it is October 2012.  Two years we have been a foundation.  Two years we have grown from 4 families with 5 children to 15 families with 18 children.  Two years we grew from a $5000 bank account to nearly a $700,000 bank account.


We have raised nearly 3/4 of a million dollars.  I just can't stop saying that because it just seems unreal to me.

And raising that money means on thing.  Finley, and all children with RDH12, have a chance of a life with sight.  A really, really, really good chance.

Our next goal is getting that clinical trial started in 2014.  Two more years into the future.

Imagine what we can do between now and then.

Happy Anniversary RDH12 Fund for Sight.  And happy anniversary to all those families that are helping us make our dreams a reality.


Anonymous said...

That's so wonderful!
Thank you God!

Your Freind,
Shayla M.

Anonymous said...

I'm having a tiny problem I can't seem to be able to subscribe your feed, I'm using google reader by the way.

PletcherFamily said...

Anonymous - hmmmm - not sure about that one. Google reader SHOULD work.

Anonymous said...

October 24th. 2012

Please, if you would like, post more about your kids, Jennifer.
I love that your family is so blessed to have such wonderful children.
Shayla M.