I know I have been quiet on here for awhile. Just getting through a busy month and not much to share.
Our campaign for Finley and our foundation has been going well. We hope to continue to grow as the months go on.
If you haven't had a chance to visit our campaign website- go to www.1foramillion,com
We can really use your help. Each month we inch a little closer to the promise of a clinical trial. But we are still so far away financially.
So in this season of giving, we ask you to consider our charity as your charity of choice. 100% of your donation goes to research for a cure. Not many charities can say that! And your donation is tax deductible.
So join us now!
Tuesday, November 25, 2014
Monday, November 10, 2014
A Beautiful Soul
Last Wednesday, one of the most beautiful people on earth, my grandma, passed away. After 9 months of battling multiple myeloma she succumbed to her disease. Cancer is a horrible, horrible disease.
She was the most wonderful person I have ever known. Her wake and her service were hard, but it was also full of laughter. We saw family we haven't seen in years. Many people came to pay their respects to her and our family and we are forever grateful.
In lieu of flowers, my grandmother chose to have donations made to Finley's foundation - the RDH12 Fund for Sight. In honor of her life, she wanted to help ensure that her granddaughter didn't lose her sight. Amazing to the end.
My brother and I had a chance to write the eulogy for my grandmother's funeral, and he and I and my two cousins (my grandmother's only other two grandchildren) had a chance to speak. It was nice to have a chance to speak from our hearts about what she meant to us.
I have decided to post here my part of the eulogy that I wrote. I thank my cousin's Kirsten and Alissa for sharing the burden of reading it at the service - that made it much easier to get through. I need to ask my brother for his part because it was very beautiful and I want to make sure I have it down so that we will always remember what he said about her.
Amava con tutto il suo cuore
This is Italian for “she loved with all of her heart”. This one sentence describes my grandmother
and how she lived her life. She never
was without kindness for others. She
never put her needs before another.
There was no one else on this earth like her.
There are so many things I could say about her. And none of it would come close to expressing
what she meant to me. I wa blessed with her olive skin and her laugh. She was one of my
best friends. Being the eldest
granddaughter of her eldest daughter – we had a special bond. Before she got sick, we talked on the phone
at least once a week. Unless I was
cooking something – then it was usually more because she would call me several
times to make sure I wasn’t messing it up.
These conversations were always
my favorite because she knew the recipe by heart. When I would ask her “Gram, how much sugar
should I put in” she would answer “oh, you know…..some” or “until it tastes right”. It always made me laugh because as someone
who has no cooking skills – this was not going to work out well.
Growing up with my Grandmother was pretty amazing. There was never a lack of food. Or good stories. Or food.
My brother, cousins, and I would spend many weekends at her house all
together. She had an amazing hill in her
yard to roll down. She had a huge
basement that was perfect for roller skating, or playing make believe. I could count on one hand the number of times
we used television as a means of entertainment while we were with her. We
would listen as she told us stories of growing up and what it means to have
nothing and yet have everything. She
taught us always to be grateful for what God has provided.
As a small family,
she was at every concert, every recital, every game, and every vacation. I don’t remember a single important life
event where she was not present. Even
when Mat and I lived in California, she made several trips out to see us and visit
(and reorganize my spice cabinet). She
showed us the importance of being present.
That hearing about it afterwards was never as good as being there
during. That has always stuck with
me. She was never too busy. It was never too big of a burden to be with
her family.
There are so many little things I loved about her. That her favorite food was candy. That her favorite feature was her hair. That she screamed the loudest of everyone in the family at the West Virginia football games. That even though she had many beautiful table cloths, the only one we ever saw was an ugly yellow and white checkered one from the 1970s because it "washes well". That each spring she helped make 1500 ravioli for the church and the money she made from the sale was her casino money. That she kept a glass jar of Pizzelles and Biscotti on her attic stairs and she pretended not to notice when you snuck one. That she always threatened us with a paddle with the wooden spoon when we misbehaved, yet never once used it. (although we found out one day that she carried it in her purse on our outings). We could go on forever and never scratch the surface of who she really was.
As a deeply religious woman, we always knew that if she
prayed, the prayer would be heard. Want
to sell your house? Have Gram bury St.
Joseph in your front yard and you will be all set. Of course – if you can’t remember where he is
buried…..that is on you. Last year, we
were really worried about having bad weather for one of my daughter’s
fundraisers. But the day was
beautiful. When talking to Gram about it
she said “well of course, honey, I put the statue of Mother Mary in the window
this morning”. She had a direct line to
God. And now that she is up there with
him, I know we are in good hands.
I am going to miss her every minute of every day. I will spend my life trying to be half the person that she was and know
that I won’t ever come close. Grazie a
lei, io farò il conteggio di tutti i giorni
: Because of her, I will make
every day count.
Sunday, November 2, 2014
One for a Million - new month - new fun!
November has started, so our contest for One for a Million continues. This month we have two different prizes that you can earn!
We have changed up the point scale and hopefully we will get even MORE people involved this month.
Help us out!
This month's prizes build from last month. Each month there will be a different inspriational word wall hanging, so in the end you can display them all together.
This month - Thankful:
We have changed up the point scale and hopefully we will get even MORE people involved this month.
Help us out!
This month's prizes build from last month. Each month there will be a different inspriational word wall hanging, so in the end you can display them all together.
This month - Thankful:
Or - you can chose this month's key chain which is the state of New York. We actually have two RDH12 kids in NY state.
So join us! Check it out at:
Saturday, November 1, 2014
17 years
Today Mat and I celebrated our 17th wedding anniversary. 17 years seems like a LOOOONG time. Has it really been that long since that cold, rainy day in November?
Today's weather mimicked our wedding day with rain and wind. We decided to take advantage of a babysitter and go to a movie and out to dinner. We went and saw Maze Runner (which was eh) and had dinner at Joe's Crab Shack which was yummy. Just a few hours away to celebrate.
17 years, 9 moves, 6 states, 3 kids, 2 dogs, and many unbelievable memories. I wouldn't change it for anything.
Today's weather mimicked our wedding day with rain and wind. We decided to take advantage of a babysitter and go to a movie and out to dinner. We went and saw Maze Runner (which was eh) and had dinner at Joe's Crab Shack which was yummy. Just a few hours away to celebrate.
17 years, 9 moves, 6 states, 3 kids, 2 dogs, and many unbelievable memories. I wouldn't change it for anything.
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