Friday, February 28, 2014

Rare Disease Day 2014

Today is Rare Disease Day across the country.  The day people storm Washington to bring awareness to rare diseases of all kinds.

Today, Finley took brailled rubber wristbands to all of her friends.  Then Mat took her to the State House where they hung her art work, along with other folks art work with rare diseases.  They provided a fancy lunch, and the US Senators of MA spoke to them.

Here are some pictures from her trip to the State House with Mat.

Finley standing by her art work.  She painted a tiger in a sunset 

 This is the executive director/founder of the Rare Disease Foundation
 Flags in the state house
 US Senator Elizabeth Warren
 US Senator Ed Markey
 They played music during lunch

 Looking at all the different art

 Finley in front of the state house

And then I made a request on facebook for people to show their support for rare disease and Finley by dressing in Red.  The response was utterly AMAZING.  I asked them to take a picture and send it to me, and they came by the dozens.  So here they are.  No names, since this is a public blog, but you have to see this.  It is too much.  Made me quite teary to see the support.