Mixed Nuts: We are all in this together

Quotes

"There is no better way to thank God for your sight than by giving a helping hand to someone in the dark." - Helen Keller
When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, "I used everything you gave me." ~Erma Bombeck
You may never know how strong you are, until being strong is your only choice.- Unknown
Keep your face to the sunshine and you cannot see a shadow' ~Helen Keller
Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.
Don't cry because it's over, smile because it happened."- Dr. Seuss
"Life is 10% what happens to you, and 90% how you react to it."
"God doesn't give children with disabilities to strong people: He gives them to ordinary, everyday people, then He helps the parents to grow stronger through the journey. Raising a child with special needs doesn't TAKE a special family, it MAKES a special family."Author Unknown
I have been driven many times to my knees by the overwhelming conviction that I had nowhere else to go – Abraham Lincoln
Be always at war with your vices, at peace with your neighbors, and let each new year find you a better man. ~ Benjamin Franklin
There are only two ways to live your life. One is as though nothing is a miracle. The other is as if everything is a miracle - Albert Einstein
The journey of a 1000 miles starts with a single step
Sometimes in the middle of an ordinary life, love gives you a fairy tale
Where there is great love, there are always miracles - Willa Cather
The Difficult we can do immediately, the impossible takes a little longer
Doing what you like is freedom. Liking what you do is happiness
There are two lasting bequests we can give our children. One is roots. The other is wings.
Be the change you want to see in the world
Don't tell God how big the storm is, tell the storm how big Your God is..........
Everything has beauty, but not everyone sees it
Fall down seven times - get up eight - unknown
Despite our differences, we sink or swim together
Life may not be the party we expected, but while we are here, we might as well dance
"The man who moves a mountain begins by carrying away small stones." -Confucius

Thursday, July 21, 2011

We are all in this together

I have a friend from high school whom I still adore.

Her name is Julie. She has a little girl named Sydney.

Sydney has a rare genetic condition, just like Finley. But unlike Finley - Sydney's condition is life threatening. Sydney has something called Dravet's Syndrome. Dravet's is a rare condition that causes Sydney to have over 1000 seizures a day.

Just like us, Julie and her family are fighting to cure their little girl. They raise money to help find a cure, and they need our help and our prayers.

I know how much you love and support Finley and our family. So - I wanted to introduce you to Julie and her beautiful daughter. She made this video that explains about her daughter's syndrome, and I was very tearful after watching it.

My heart goes out to all families and all children who suffer. I feel so lucky about the health of our children. That even with Finley's diagnosis, she is healthy. She is here. There are so many that aren't as lucky as we are.

So please - Julie is a fellow Connellsville family. She will be holding a fundraiser for her little girl in the fall, and when I have more details, I will post them here. I plan on being there to support her if I can, and I hope you will too. Just like us - she wants to save her little girl from these terrible seizures and watch her grow up happy and healthy.

But she can't do it alone. If you go to www.dravet.org and click on "donate now," on the next page you can checkmark "research fund" and then list "Sydney Michaels Research Fund" in the comment section. Any money donated will then help them meet their goal of $30,000.
Please watch.