Mixed Nuts: Update on Research for Finley

Quotes

"There is no better way to thank God for your sight than by giving a helping hand to someone in the dark." - Helen Keller
When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, "I used everything you gave me." ~Erma Bombeck
You may never know how strong you are, until being strong is your only choice.- Unknown
Keep your face to the sunshine and you cannot see a shadow' ~Helen Keller
Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.
Don't cry because it's over, smile because it happened."- Dr. Seuss
"Life is 10% what happens to you, and 90% how you react to it."
"God doesn't give children with disabilities to strong people: He gives them to ordinary, everyday people, then He helps the parents to grow stronger through the journey. Raising a child with special needs doesn't TAKE a special family, it MAKES a special family."Author Unknown
I have been driven many times to my knees by the overwhelming conviction that I had nowhere else to go – Abraham Lincoln
Be always at war with your vices, at peace with your neighbors, and let each new year find you a better man. ~ Benjamin Franklin
There are only two ways to live your life. One is as though nothing is a miracle. The other is as if everything is a miracle - Albert Einstein
The journey of a 1000 miles starts with a single step
Sometimes in the middle of an ordinary life, love gives you a fairy tale
Where there is great love, there are always miracles - Willa Cather
The Difficult we can do immediately, the impossible takes a little longer
Doing what you like is freedom. Liking what you do is happiness
There are two lasting bequests we can give our children. One is roots. The other is wings.
Be the change you want to see in the world
Don't tell God how big the storm is, tell the storm how big Your God is..........
Everything has beauty, but not everyone sees it
Fall down seven times - get up eight - unknown
Despite our differences, we sink or swim together
Life may not be the party we expected, but while we are here, we might as well dance
"The man who moves a mountain begins by carrying away small stones." -Confucius

Sunday, March 6, 2011

Update on Research for Finley

I was hoping to have everything 100% in place before I wrote this post, but I am "stalling" for time until I get all the pictures of Finley's visit to Connellsville last week. I am hoping to post those either tomorrow or Tuesday once I have them all.

Last week, we got a call from Spartanburg (the Foundation that helps the monetary side of our Fund) and they have FINALLY entered all the donations we have received since we started our Fund last October. They just had to finish entering all of the telethon checks (there were so many - it was a big task), and they finally finished.

We have raised $75,000 since we started the Fund. $75,000. Just let that sit with you a little while. I still can't believe how amazing that is. What amazing supportive friends and family we have.

So - Mat made the call to Dr. Bennett. (the researcher that is going to do the RDH12 research). She was very excited. She said she already has the two people who are going to do the research and has ordered what she needs to get it started.

We can't wait to go down to Philadelphia and present the check. And we are going as a group - Lori and her daughter; The Fiore's and their children; the Pryor's and their children. And us. We are all going to be together in Philadelphia on the 28th of March to present the money to Dr. Bennett and her lab. Dr. Bennett would like there to be a press release and we are happy about that as well. We want everyone to know what we are doing - and that thanks to our family and friends, a cure is going to become a reality.

By the end of this first year, a cure should be sitting in Philadelphia. That $70,000 will start the CURE of RDH12.

Do we have a long way to go after this first year? Yes. Will it cost into the millions once they are ready for human trials? YES. But we can do this. We will cure our children. And I know all of you who know us will be right there with us.

So - the reality is here. The 28th of March will be the beginning of the cure for RDH12. I have waited a long time to be able to say that. When we started this journey almost two years ago, we had little hope. Now, I have FAITH that Finley and kids like her will be cured, and will always see.

Stay tuned.