Mixed Nuts: Rare Disease Day 2014

Quotes

"There is no better way to thank God for your sight than by giving a helping hand to someone in the dark." - Helen Keller
When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, "I used everything you gave me." ~Erma Bombeck
You may never know how strong you are, until being strong is your only choice.- Unknown
Keep your face to the sunshine and you cannot see a shadow' ~Helen Keller
Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.
Don't cry because it's over, smile because it happened."- Dr. Seuss
"Life is 10% what happens to you, and 90% how you react to it."
"God doesn't give children with disabilities to strong people: He gives them to ordinary, everyday people, then He helps the parents to grow stronger through the journey. Raising a child with special needs doesn't TAKE a special family, it MAKES a special family."Author Unknown
I have been driven many times to my knees by the overwhelming conviction that I had nowhere else to go – Abraham Lincoln
Be always at war with your vices, at peace with your neighbors, and let each new year find you a better man. ~ Benjamin Franklin
There are only two ways to live your life. One is as though nothing is a miracle. The other is as if everything is a miracle - Albert Einstein
The journey of a 1000 miles starts with a single step
Sometimes in the middle of an ordinary life, love gives you a fairy tale
Where there is great love, there are always miracles - Willa Cather
The Difficult we can do immediately, the impossible takes a little longer
Doing what you like is freedom. Liking what you do is happiness
There are two lasting bequests we can give our children. One is roots. The other is wings.
Be the change you want to see in the world
Don't tell God how big the storm is, tell the storm how big Your God is..........
Everything has beauty, but not everyone sees it
Fall down seven times - get up eight - unknown
Despite our differences, we sink or swim together
Life may not be the party we expected, but while we are here, we might as well dance
"The man who moves a mountain begins by carrying away small stones." -Confucius

Friday, February 28, 2014

Rare Disease Day 2014

Today is Rare Disease Day across the country. The day people storm Washington to bring awareness to rare diseases of all kinds.

Today, Finley took brailled rubber wristbands to all of her friends. Then Mat took her to the State House where they hung her art work, along with other folks art work with rare diseases. They provided a fancy lunch, and the US Senators of MA spoke to them.

Here are some pictures from her trip to the State House with Mat.

Finley standing by her art work. She painted a tiger in a sunset

This is the executive director/founder of the Rare Disease Foundation

Flags in the state house

US Senator Elizabeth Warren

US Senator Ed Markey

They played music during lunch

Looking at all the different art

Finley in front of the state house

And then I made a request on facebook for people to show their support for rare disease and Finley by dressing in Red. The response was utterly AMAZING. I asked them to take a picture and send it to me, and they came by the dozens. So here they are. No names, since this is a public blog, but you have to see this. It is too much. Made me quite teary to see the support.