Mixed Nuts: Rare Disease Day

Quotes

"There is no better way to thank God for your sight than by giving a helping hand to someone in the dark." - Helen Keller
When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, "I used everything you gave me." ~Erma Bombeck
You may never know how strong you are, until being strong is your only choice.- Unknown
Keep your face to the sunshine and you cannot see a shadow' ~Helen Keller
Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.
Don't cry because it's over, smile because it happened."- Dr. Seuss
"Life is 10% what happens to you, and 90% how you react to it."
"God doesn't give children with disabilities to strong people: He gives them to ordinary, everyday people, then He helps the parents to grow stronger through the journey. Raising a child with special needs doesn't TAKE a special family, it MAKES a special family."Author Unknown
I have been driven many times to my knees by the overwhelming conviction that I had nowhere else to go – Abraham Lincoln
Be always at war with your vices, at peace with your neighbors, and let each new year find you a better man. ~ Benjamin Franklin
There are only two ways to live your life. One is as though nothing is a miracle. The other is as if everything is a miracle - Albert Einstein
The journey of a 1000 miles starts with a single step
Sometimes in the middle of an ordinary life, love gives you a fairy tale
Where there is great love, there are always miracles - Willa Cather
The Difficult we can do immediately, the impossible takes a little longer
Doing what you like is freedom. Liking what you do is happiness
There are two lasting bequests we can give our children. One is roots. The other is wings.
Be the change you want to see in the world
Don't tell God how big the storm is, tell the storm how big Your God is..........
Everything has beauty, but not everyone sees it
Fall down seven times - get up eight - unknown
Despite our differences, we sink or swim together
Life may not be the party we expected, but while we are here, we might as well dance
"The man who moves a mountain begins by carrying away small stones." -Confucius

Wednesday, February 29, 2012

Rare Disease Day

Today, we raise our voices for Finley and for all children who suffer from a rare disease.

Today our family and friends wore red, their Finley's Fighters shirts, their wristbands, their braille shirts - in honor of our little girl.

On of my childhood friend's little boy wrote a book report using our book that Mat and Finley wrote together.

He shared it with his class today - how cool is that?

I talked some of the people who showed their support for Finley today into sending me a picture of themselves.

Today kids in Finley's class wore red and we sent them all a Finley's Fighters wrist band to wear. Arlington's class wore Finley's Fighters wrist bands. Cainan wore his Finley's Fighters shirt and got to talk to his class about Finley.

Mat is in Washington DC today talking to the National Institute of Health. Family and friends are sending letters to their local congressman/woman to express the need for more money and research for rare diseases.

People are spreading the word today about Finley, LCA, and our cause.

Our video is being passed around so that more awareness about RDH12 is raised.

Today is a great day.

But today - for us - is no different than yesterday and no different than tomorrow. We push this hard every day for Finley. It is always on our minds. Every day we don't have a cure is another day closer to total blindness for her.