Okay! It is done. Sorry I was MIA yesterday, but we were at a hockey game until really late with Arlington, and I didn't have a chance to post.
But - the video we made for Finley and our R.A.R.E. book project, is finished. We have another video we are working on, but this is the big one. It is a little long (a little over 10 minutes) but we had about 120 clips, and I wanted to include them all. Everyone is unique and special, and I have enjoyed watching them over and over.
I hope you enjoy the video. I hope you share it with your friends and family and they share it with their friends and family. Spread the word about RDH12 and LCA. Spread the word about what our cause is trying to do. Help us win the fight against childhood blindness.
You Tube will not post this large video on my blog, so PLEASE - click on the link below and it will take you there - thank you!!
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Cainan
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Quotes
- "There is no better way to thank God for your sight than by giving a helping hand to someone in the dark." - Helen Keller
- When I stand before God at the end of my life, I would hope that I would not have a single bit of talent left, and could say, "I used everything you gave me." ~Erma Bombeck
- You may never know how strong you are, until being strong is your only choice.- Unknown
- Keep your face to the sunshine and you cannot see a shadow' ~
Helen Keller - Promise me you'll always remember: You're braver than you believe, and stronger than you seem, and smarter than you think.
- Don't cry because it's over, smile because it happened."-
Dr. Seuss - "Life is 10% what happens to you, and 90% how you react to it."
- "God doesn't give children with disabilities to strong people: He gives them to ordinary, everyday people, then He helps the parents to grow stronger through the journey. Raising a child with special needs doesn't TAKE a special family, it MAKES a special family."Author Unknown
- I have been driven many times to my knees by the overwhelming conviction that I had nowhere else to go – Abraham Lincoln
- Be always at war with your vices, at peace with your neighbors, and let each new year find you a better man. ~ Benjamin Franklin
- There are only two ways to live your life. One is as though nothing is a miracle. The other is as if everything is a miracle - Albert Einstein
- The journey of a 1000 miles starts with a single step
- Sometimes in the middle of an ordinary life, love gives you a fairy tale
- Where there is great love, there are always miracles - Willa Cather
- The Difficult we can do immediately, the impossible takes a little longer
- Doing what you like is freedom. Liking what you do is happiness
- There are two lasting bequests we can give our children. One is roots. The other is wings.
- Be the change you want to see in the world
- Don't tell God how big the storm is, tell the storm how big Your God is..........
- Everything has beauty, but not everyone sees it
- Fall down seven times - get up eight - unknown
- Despite our differences, we sink or swim together
- Life may not be the party we expected, but while we are here, we might as well dance
- "The man who moves a mountain begins by carrying away small stones." -
Confucius
We are a family of 5 living in Massachusetts. Mat and I have been married for 16 years, and we have three children. Arlington is 11 years old, and Finley and Cainan are 8 years old. We adopted Cainan from China when he was 14 months old. He was born with cleft lip and palate level three. This blog started out as our journey to bring him into our family and has turned into our family blog. He and Finley are only 30 days apart!! We love being a blended family, and enjoy sharing about our trials and tribulations through becoming one! Also, our daughter Finley was diagnosed in 2009 with Lebers Congenital Amaurosis (LCA) a rare genetic eye condition that has made her legally blind. Come and read about our proud family!
If you want to read Cainan's story, click here:
The Pletcher Five Journey Blessings Times Three: Cainan's Story
If you want to read more about Finley - go here: Finley's Story
If you want to read Cainan's story, click here:
The Pletcher Five Journey Blessings Times Three: Cainan's Story
If you want to read more about Finley - go here: Finley's Story
Children's Rare Disease Network
Blog Roll
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2012
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February
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- Rare Disease Day
- okay okay
- Video
- Rare Disease Day
- A little snippet
- Hiatus. Again
- Video
- Dining in the Dark
- MIA
- 9
- blah
- Arlington's first birthday celebration
- Event planning and other fun stuff
- Upcoming Casino trip in Pennsylvania
- A Finley update and a request
- The Birthday Boy
- Words to live by
- When you live with a Scientist
- Inexcusable
- Father/Daughter Dance
- Trying to move on now
- Spring has sprung
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February
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1 comment:
Oh my goodness - it is awesome! I should have known I would cry. It is 7 am, and I am sitting at my desk bawling my eyes out! How wonderful to have so many people fighting for our girl :-)
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