




I need to work on my positive attitude. I need to realize that Finley will lead a full life and will go to college, get married, have children. She can do anything she wants to do.


Sight. Or not.
So I encourage you to work on your positive attitude as hard as the children at my school are working. We all can use a little less negativity.
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On other notes:
We received the written report from Finley's vision field test. It had a nice recommendation section that we were able to share with the pre-school. They are already in the process of trying some of the recommendations - such as darkening and enlarging her name plate at her spot at the table. And darkening worksheets and the papers where she practices writing her name. Those are a good start.
It did report her vision as being 20/100 at this time. Now, like me, some of you may be wondering why glasses will not help Finley. Since 20/20 is perfect vision and 20/60 is normal vision for a 3 year old, why is it at 20/100 she can't have glasses to help her see clearer? The answer is - glasses fix refractory errors - near sightedness, far sightedness, astigmatism. The light must bounce off the retina and then back through the glasses to receive clarity.
Do you see where I am going with this?
Finley does not have functioning retinas. Her retinas are largely black - only 10% function. Not enough for glasses to work. So we could put strong glasses on her and nothing would change. She wouldn't see any differently through the glasses than she does without.
The eye doctor did recommend high levels of maginifation. Finley's teacher from BESB is alreayd working on a few things she would like to try with Finley (Finley is so young she won't tolerate things that are too complicated) and then this summer when we go back to the vision field specialist, they will fit her for some magnification devices at the level she needs.
Vision 101. You're welcome.



She also proved her goofiness once more this week at dinner. We were all sitting around the table, eating our meal and all of the sudden Finley announces "my butt is talking".
We look at her in kind of disbelief. And then burst out laughing. This is Finley's "kind" way of telling us she passed gas. Isn't she polite? I don't think Mat and I are going to have to worry about her dating for a LONG time.
Cainan is doing well. We are waiting for a workbook we ordered for him to help him practice writing his letters. He needs a lot of help with his writing - he still doesn't have very strong wrist control. So we are anxious to help him work on that.




But I am lucky to be married to such a wonderful loving husband. He is a great father and a wonderful person.
We made him Funfetti brownies tonight for his birthday. I am terrible at making cakes, so this is what he gets. But he loves brownies, so he wasn't sad.


We are going out for lunch at a New Orleans restaurant he wants to try and we have some presents for him. We will be celebrating again next weekend when his and my family arrive. I will post about his birthday on Tuesday.
Tomorrow we will be remembering another wonderful Matt. 7 years ago tomorrow my Godbrother, Matt, left this world and went into the waiting arms of God. 7 years. It is hard to watch time pass, yet stand still. I think about him every day. I think about all the fun times we had growing up. What a wonderful boy he was. What a great man he had become. The world lost and heaven gained 7 years ago. I believe we will see him again someday. My last memory of him was dancing together at my brother's wedding and laughing and having a great time. I was pregnant with Arlington at that time and I couldn't wait for him to meet her. He was killed a week before she was born. But I know he was there with us the day she was born - all around us.
Our hearts are with my Godfamily - Chris, Mary Louise, Ryan and Christy - on this day. He is missed terribly and we think of him every day.
"Don't tell God how big your storm is - tell your storm how big GOD is."
See you tomorrow for "So How Did It Go, Sunday."
2 comments:
I know it's hard to be positive, but I think we all need to focus on that for our little butt-talker!
Happy Birthday to Mat!
Hi Jen, thank you very much for the special way of remembering Matt. We miss him so much. I think that you are grieving for Finley as we grieve for Matt. For a parent any loss experienced by a child brings unimaginable pain. But, as you know, we must continue on with courage and faith. You and Mat are doing all the right things for Finley. She is a bright, intelligent, and loving child. Hold on to your faith and always know that you have many shoulders to lean on when the load is too great. God Bless.
Love, Mary Louise
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