If you are new

I have some new readers, so I would like to say welcome!  If you are new to our blog, please take a look around.  I have three children - one who is severly vision impaired and who is losing her vision.  We have a foundation that raises money for research for her eye disorder - the RDH12 Fund for Sight.  You can click on the link on the left to go and visit our site and learn more about Lebers Congenital Amaurosis.  Her name is Finley and she is 5 years old.  She is sweet, crazy, and what most of this blog is about.  We found out about her diagnosis when she was 3.

We have a little boy who we adopted when he was 14 months old from China.  He had cleft lip and palate and has had 9 surgeries since he came home from China.  He is a sweet, easy going boy, and we are so lucky to have him as part of our family.  His name is Cainan and he is only 33 days older than our youngest child, Finley.  Having virtual twins that we weren't expecting has made life interesting, but we wouldn't trade it for anything.

Our eldest, and the queen bee is Arlington.  She is about to turn 9 years old and is in 3rd grade.  I can honestly say I wouldn't know what I would do without such a wonderful first born.  She is sweet, outgoing, and loves with all of her heart.  She is an amazing kid.

Mat, my hubby is a geneticist with Pfizer.  He is the Director of Orphan Diseases there.  This works out great professionally, and personally because Lebers Congenital Amaurosis is classified as an "orphan disease".  He has met so many people through his contacts through work to get the word out about Lebers and Finley's particular type.  He is an amazing dad and husband, and we are a team. 

I am staying at home.  This is new for me this year.  I am a registered nurse, but this year afforded me to stay home and focus more on Finley's needs and get the kids settled in our new house, new state, and new schools.  I love being a nurse, but I am enjoying staying at home as well.  I am having a chance to volunteer in the kid's schools and classes which I have not been able to do before.  I am going to be subbing as a school nurse but other than that - I am taking care of the family.

So - that is us in a very small nutshell.  Feel free to say hello and come back!  I take a lot of pictures, and love sharing about our foundation, and Lebers so that more can be known about it.  And thanks for stopping by!